
iknowwhatyouredoing
something inside turned the lights out
- Jan 30, 2020
- 40
i dont want to die but i feel like i have no other choice due to my life decisions which have lead to chronic guilt
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Exact same feeling, just in to much pain and suffering to go on, noone can live with these problems Used to think I was just weak but it has become to much to bareI don't want to die, but I have to die.
And you too, i totally understand how you feel and I'm the same as you - My ears issues have destroyed both our lives so wanting to CTB is understandable.I feel your pain I really do. I'm only 41 and now my life is fucked due to these stupid ears. If I had my normal ears back I'd be back out there loving life. I wake up every day wishing it was all a dream. Absolute shitness
You've gone through exactly the same as me and you soon realise how flawed the system is and how scary it is when nothing can be done to correct your physical issues, only to then be told you need to work on your mental health! It's not a mental health issue, it's physical issues causing mental distress, but because voluntary assisted dying is not available in this country all they can then offer is to put you on antidepressants, refer you to the crisis team, offer counselling, CBT etc. That's when you realise you're trapped in this position, alone and with no help available to either cure your physical conditions or to put an end to it.And you too, i totally understand how you feel and I'm the same as you - My ears issues have destroyed both our lives so wanting to CTB is understandable.
What shocked me was how little ENT Consultants know and can do. At the start of my illness I triely expected to be given a course of meds and that would cure all. But was shocked they could do nothing and admitted they don't know how Menieres Disease is caused nor how to relieve symptoms or cure it. Googling up the disease is all bullshit - they say they can help the disease with meds and diet but it's all bullshit, I've tried it all. Since joining a FB group on the disease last year 3 members have completed CTB - we try and support each other but it's so hard as you are fixated on your own debilitating symptoms.
24/7 nausea feeling like you need to throw up, frequent violent vertigo attacks lasting 5 hrs, head pain and pressure, many trips to hospital to be sent home again the next day as they cant help you. And the annoying screaming tinnitus is so frustrating, hearing my voice back at me, popping and clicking noises, can hear my heart beating, hear whoosh sounds all the time, chronic hyperacusis......the list goes on.
All this led to severe depression and agitation. No meds have helped and they have said I have treatment resistant depression and are offering ECT - I told them no way as the root cause is still going to be there and destroying my life no matter what treatment they throw at me. I've well and truely had enough.
Strong SI and the thoughts of hurting my mum and dad have so far prevented me from CTB. Hopefully I will soon overcome that and complete CTB and be at peace.
Totally understand what you are going through and i genuinely wish you peace.
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Only this morning my psychiatrist said "I feel your problems are mental because you're preoccupied with it". WTF? I can't breathe, of course I'm preoccupied with it. It's absurd. The absence of assisted dying, as you say, forces those of us with odd physical symptoms down the mental health route. I wish I was Dutch!You've gone through exactly the same as me and you soon realise how flawed the system is and how scary it is when nothing can be done to correct your physical issues, only to then be told you need to work on your mental health! It's not a mental health issue, it's physical issues causing mental distress, but because voluntary assisted dying is not available in this country all they can then offer is to put you on antidepressants, refer you to the crisis team, offer counselling, CBT etc. That's when you realise you're trapped in this position, alone and with no help available to either cure your physical conditions or to put an end to it.
They label you as depressed which is a fucking joke. I'm like yeah no shit I'm depressed, wouldn't you be if living with all this crap. You can't just treat the depression side of it and then you'll be magically happy about all the physical issues you're going through, it simply does not work that way.
It's a complete joke. It's because there is no option of voluntary assisted dying, so all they can do is discuss ways of trying to cope/live with whatever condition or conditions you have, because they cannot offer anything else. That's when you feel completely alone and trapped in the realisation that you cannot be cured and are expected to carry on living with your conditions until you eventually die of a natural death, which could be decades away.Only this morning my psychiatrist said "I feel your problems are mental because you're preoccupied with it". WTF? I can't breathe, of course I'm preoccupied with it. It's absurd. The absence of assisted dying, as you say, forces those of us with odd physical symptoms down the mental health route. I wish I was Dutch!
Thanks to this website, I don't feel trapped and I don't feel alone. It's good to know there are others like you and keg-Ireland going through similar things.It's a complete joke. It's because there is no option of voluntary assisted dying, so all they can do is discuss ways of trying to cope/live with whatever condition or conditions you have, because they cannot offer anything else. That's when you feel completely alone and trapped in the realisation that you cannot be cured and are expected to carry on living with your conditions until you eventually die of a natural death, which could be decades away.
It's not about giving up on people, it's about not letting them continue suffering when there are no medical cures for the conditions causing suffering. What a fucking stupid thing to say. If your psychiatrist was going through what you are, they wouldn't be saying that then! Gets me so angry.Thanks to this website, I don't feel trapped and I don't feel alone. It's good to know there are others like you and keg-Ireland going through similar things.
A couple of appointments ago I even brought up Dutch euthanasia with my psychiatrist. His only reply was "we don't give up on people in this country". It's a complete joke as you say. Worse still are the government. They complain about people living on the sick but don't provide humane ways to die. I get 750 quid sick pay on universal credit per month, presumably you're on the same?
Quite. I didn't have much of an opinion on euthanasia before I become sick, now I'm strongly in favour. My psychiatrist has come to the conclusion that I'm crazy, he thinks my nose problems are all in my head and all it needs is psychiatric drugs to sort it out. It's harsh, but he hasn't looked at any the research into the condition I have (rhinitis medicamentosa), instead he's come to his own conclusions based on other patients he's seen. It gets me very angry too.It's not about giving up on people, it's about not letting them continue suffering when there are no medical cures for the conditions causing suffering. What a fucking stupid thing to say. If your psychiatrist was going through what you are, they wouldn't be saying that then! Gets me so angry.
I've been off work for 5 months now, so I'm still receiving full sick pay, but after June I have no idea what happens then. Praying my Pegasos application is approved before then so I don't need to worry about it because I'll be gone!
Might have to look into the universal credit if not.
I was the same, never gave suicide or voluntary assisted dying a 2nd though before my ear conditions. Certainly a wake up call to how fucked we all are at some point in our lives. Even if by some god damn miracle I find cures for my ear conditions, I would still continue to be a member of Pegasos or Dignitas because we will all be in a position at some point where we want our suffering to end peacefully.Quite. I didn't have much of an opinion on euthanasia before I become sick, now I'm strongly in favour. My psychiatrist has come to the conclusion that I'm crazy, he thinks my nose problems are all in my head and all it needs is psychiatric drugs to sort it out. It's harsh, but he hasn't looked at any the research into the condition I have (rhinitis medicamentosa), instead he's come to his own conclusions based on other patients he's seen. It gets me very angry too.
I hope your Pegasos application is approved too, for your sake. SN suicide is doable but much worse than assisted suicide. I have read that the Swiss clinics are quite fussy though and do reject people, so who knows if you'll be successful. I'm going with SN later this year if the surgery fails…
This.I don't want to die. Dying is such a hassle. I just want to be dead.
Couldn't agree more. Without this website, I'd be faced with decades of misery with my stupid nose.I was the same, never gave suicide or voluntary assisted dying a 2nd though before my ear conditions. Certainly a wake up call to how fucked we all are at some point in our lives. Even if by some god damn miracle I find cures for my ear conditions, I would still continue to be a member of Pegasos or Dignitas because we will all be in a position at some point where we want our suffering to end peacefully.
Very very few people pass peacefully in their sleep, so the chances are we will develop conditions that cause suffering, even if you make it to old age.
My opinion now having been through what I have is that we shouldn't even be allowed to bring someone into this world without the option of peacefully exiting when the time comes.