Discussion Anyone else have MECFS/Long Covid planning to CTB due to this?

[It'sMyLife]

Didn't read every post on thread(srry im not ok rn) but YES. I have many conditions and there's a lot of dif names but holy shit the time I got COVID and after... well I was never the same.


Plus ME/CFS got officially diagnosis but for me it mixes with other health stuff.


Its fucking awful. No one really understands the tired. The desire to do things. Pushing ones self. Using adrenaline instead of core energy. The continuously crashing.


It's... a lot.

Can you open the link I posted?

 

[Busridin'26]

Can you open the link I posted?

Yes I was able to. Im not able to read it atm but I am somewhat familiar with the vitamin. Amonv others. A lot of my blood work comes back normal. There is some to work on and I am always interested in multiple approaches. I shall read ot over when head it clearer ty

 

[lemonandcapers]

I'm late to the party, but I was diagnosed with an autoimmune condition after getting COVID.

The fact that I wear a mask and have to miss out on so many things just to be somewhat healthy is the main driver of my SI. Nobody really wants to associate with me because they think I'm "paranoid" and because "COVID is over".

 

[qewpie]

I have a version of this from chronic Lyme disease, covid made it worse, and then also other infections added on top. Lyme disease can act like HIV and suppress the immune system. Lyme may be at play in long covid, as tests aren't accurate. Anyway I feel similarly to everyone on this thread, I've lost everything now, am housebound with my parents, and feel terrible and often in pain. Latest symptom is not being able to sleep basically at all.

What are your chosen methods? I managed to source SN, hoping it's high purity. I had planned to do it but then read some threads on failure, and SI and guilt kicked in. I'm trying some treatments but really I think CTB is probably the answer.

How do we get over SI when really we wish to heal (but seems like we can't)?
This bit about getting over SI resonates with me. I may have to really dissociate and use drugs to do it… what about you?

oh..I didn't realize I'd seen you in this thread. I hope your CTB was successful and that you're not out there still alive trapped in an even worse state of body…

I'm late to the party, but I was diagnosed with an autoimmune condition after getting COVID.

The fact that I wear a mask and have to miss out on so many things just to be somewhat healthy is the main driver of my SI. Nobody really wants to associate with me because they think I'm "paranoid" and because "COVID is over".

welcome! I think missing out on things isn't too terrible when you realize that if you get more sick you can miss out on even simpler things..like e.g. very severe MECFS can't even take a look at sunlight




anyways for my almost 4 month anniversary i can say:

nothing has changed about my severity!!! I lay in bed with Unending Hell as my constant symptoms (which includes malaise, bounding pulse which vibrates my body like an earthquake, sinus pressure, headache)

i can walk but feel completely like a zombie PLUS i tried LDN which helps so many ppl but gave me a balance disorder instead so walking is Even More Difficult

im so fucking cursed

 

[qewpie]

someone posted to reddit about their husband with LC who ctb'ed. yup, this disease is a killer

 

[NeverHis]

Yes and it completely ruined my life.
The "fun" part of it is that it also seems to ruin my death. I don't qualify for Switzerland because doctors never really took me seriously, so I avoided them a lot. Which means my journals aren't good enough.
I'm too sick to know anyone, so I can't go on the streets and buy some "tar". I can't even order a package without the help of getting it here from a carer (parent in this case), so even if I were to find a SN source that's not gonna be stopped by customs, it will be stopped by my parents because the law says they have a responsibility to call the authorities if they find out what I'm planning to do.

 

[qewpie]

Yes and it completely ruined my life.
The "fun" part of it is that it also seems to ruin my death. I don't qualify for Switzerland because doctors never really took me seriously, so I avoided them a lot. Which means my journals aren't good enough.
I'm too sick to know anyone, so I can't go on the streets and buy some "tar". I can't even order a package without the help of getting it here from a carer (parent in this case), so even if I were to find a SN source that's not gonna be stopped by customs, it will be stopped by my parents because the law says they have a responsibility to call the authorities if they find out what I'm planning to do.

I'm so sorry that you're in this situation as well. I hope we can find some peace.


Also, I'm back here to post because it seems a prominent member of the LC community has ctb'ed. I see posts about it all over my Twitter timeline. It sucks that there's really only one way out.

 

[U. A.]

I'm back here to post because it seems a prominent member of the LC community has ctb'ed. I see posts about it all over my Twitter timeline.

Curious who you mean. Strange timing the same day of Alice Wong's passing...

 

[qewpie]

Curious who you mean. Strange timing the same day of Alice Wong's passing...

the day before her passing, it was announced that @leslieleeiii passed. he'd gone missing a few days earlier

 

[wheelsonthebus]

I don't know at this point if i'm more suicidal or homicidal but the next doctor to assume i'm "illnessfaking" is losing the ability to have children and possibly also his kneecaps.

 

[Zzquilb458]

I'm late to the party, but I was diagnosed with an autoimmune condition after getting COVID.

The fact that I wear a mask and have to miss out on so many things just to be somewhat healthy is the main driver of my SI. Nobody really wants to associate with me because they think I'm "paranoid" and because "COVID is over".

Good to see some others express the truth. I was worried maybe nobody bere would even remotely entertain that covid is still circulating!

 

[KuriGohan&Kamehameha]

As I understand it you have a half decent chance of recovery/improvement from those kinds of conditions in the first few years, especially if you're not old.

If you got sick in late 2023 then you still have a good chance of significant improvement

This is what really messes me up as someone who has had this shit for now over 8 years, since I was in high school. I had mononucleosis and severe flu, and never really recovered. I developed CFS and other chronic issues which have persisted over the years. It was easier to have hope when there were still so many things left to try, and having time on your side.

It's already hard enough being sick and having the majority of people disbelieve you/think it's laziness or made up, then there's the internal struggle of grappling with the reality that it's likely permanent, after so many years. This condition is a good 70% of why I want to ctb.

 

[Sphene]

Bumping this, but I needed to vent a bit. Nearly 20 years for me of ME/CFS. I used to be able to cope for such a long time. Lately though, all I can think about is different ways of ending it. What life am I going to be able to live anyway? I have no work experience, no education, not been in a relationship for a decade, not seen a friend in person for years either. It's like my life just ended before it even began. My only regret is suffering for all these years. I wish I went for the rope when I was a teenager instead of some half-assed attempt with painkillers..

 

[It'sMyLife]

Seeing this thread come back up I went back to Mercola's site. He has a recent article from last month on ME/CFS and a breakthrough blood test for it . I hope this helps you all. Taking the niacinamide still might help some. These articles are def worth reading. Dr M. has proven he's always several years ahead of everyone else. He was talking about methylene blue many years ago and now every one with a fb page or youtube channel are hawking the stuff.
https://articles.mercola.com/sites/articles/archive/2025/11/20/3d-genomic-mapping-technology.aspx

Niacinamide Vitamin B3 Dietary Supplement 50 mg Mini Tabs

Niacinamide Vitamin B3 is a supplement that helps you restore and maintain healthy levels of NAD+ for optimal health and longevity.*

products.mercolamarket.com

 

[ineedtogetout]

I caught covid in late 2023 and have been so sick ever since. Diagnosed with MCAS, ME, POTS and much more. Spent 7 months in hospital this year and am now just spending 99% of my day in bed fucking miserable.

I don't wanna spend decades doing this. There's no point. It's just endless suffering, watching everyone leave you and live while you'll never be able to.

Anyway, anyone else have these conditions too? Seems like ctb is a huge cause of death with these conditions. Just thought I'd reach out in case anyone was here to talk.

Have you tried ldn? Luteolin?
Yea thats me... diffrent illnesses same spectrum been thwre done that sadly..