It's been decided

[GrizzlyGrapefruit]

So, I had my doctor's appointment today. Went exactly as I thought it would despite me trying to remain hopeful. I explain my situation, and 90% of what I say goes right over the head of the doctor. She did not care at all about all of my most debilitating symptoms, and only wanted to treat the one thing that has come up wrong on my blood work. I understand wanting to treat that, but when it fails to explain why I'm experiencing so many other things, I don't see why it doesn't warrant further investigation. Not a single doctor has ever wanted to dig deeper.

Five years of hell, and there is still absolutely no light at the end of the tunnel. It's insane to me. I wouldn't be surprised if I CTB within this week.

I never in a million years imagined 21 to look like this.

 

[Grandexit]

Sorry. I spoke to my psychiatrist today, told her the latest round of mystery pills she prescribed me have done fuck-all. "So just double the dose!".

With which other brain chemical-altering substances can a "professional " be so fucking glib about? Pumping twice the amount of chemicals into a person with no idea of what it's going to do to them? I was astonished. But ask for double the dose of benzos or pain meds and see how fast you're cut off.

I'm sorry the medical profession has failed you. I'm really starting to believe unless you have a traumatic injury, we don't have healthcare. It's all about earning money, or not spending resources.

 

[Ghost2211]

I'm sorry youre dealing with poor heath, and unanswered concerns. It really sucks when doctors dont listen, and take people's concerns into consideration. I had the same issue until symptoms got scary serious and they had to listen.

Have you been doing your own research to try to figure out what's going on? Sometimes they listen better if you bring ideas to the table.

 

[TimeToBiteTheDust]

Five years of hell, and there is still absolutely no light at the end of the tunnel.

6 years of hell for me. I'm in same situation. I couldn't recover from my injury and I don't want to live like this. I prefer die now to live with an injury.

 

[faust]

I am so sad you are in situation like this... I think nobody has to suffer. Especially that much. When doctors really do not care about your symptoms, it is very painful, I felt so in emergency department. If you would like to try once more, try to avoid saying you have the (only) thing which affects your blood work. Maybe something different might be found according to your symptoms. Anyway, wish you find peace! Sending love

 

[Flippy]

I honestly think I'm completely loosing faith in doctors. It's like "here's my assessment, take this and stop bothering me!" And when you have the nerve to maybe try to push them to reconsider something you are worry may have been overlooked they behave like you have no right to raise concerns. It's like you are questioning their infallibility! FFS!

 

[faust]

I honestly think I'm completely loosing faith in doctors. It's like "here's my assessment, take this and stop bothering me!" And when you have the nerve to maybe try to push them to reconsider something you are worry may have been overlooked they behave like you have no right to raise concerns. It's like you are questioning their infallibility! FFS!

Oh, this is so true. When you argue with a doctor, doctor often tells you he is a doctor and that he is right. And you are just an incarnation of ignorance.

 

[Flippy]

Honestly the only other place I've encountered this is with car mechanics. I'm sure there are good ones around. After the way they treated my car, I haven't been back to a mechanic since. I've done all the repairs myself, it's cheaper! Medicine doesn't really work that way sadly :-(

 

[faust]

Honestly the only other place I've encountered this is with car mechanics. I'm sure there are good ones around. After the way they treated my car, I haven't been back to a mechanic since. I've done all the repairs myself, it's cheaper! Medicine doesn't really work that way sadly :-(

If I had soldering iron at home, would not be necessary to go tomorrow to fix my vaporizer :/

 

[Flippy]

If I had soldering iron at home, would not be necessary to go tomorrow to fix my vaporizer :/

I would recommend investing in one! :-) I have always been interested in electronics and it can be very satisfying to repair things yourself. You may already do this yourself so I may be preaching to the choir :-)

 

[Backwood_tilt]

I never in a million years imagined 21 to look like this.

I've also had to struggle with serious physical illness in my early twenties ( still now) and i can relate to this feeling. It is very surreal. I didn't get a diagnosis until my mid-20's, so i spent years being ignored by physicians as well.

Sorry for what you're going through.

 

[faust]

I would recommend investing in one! :-) I have always been interested in electronics and it can be very satisfying to repair things yourself. You may already do this yourself so I may be preaching to the choir :-)

Yes, a primitive one costs only around 10 euro and a little bit better around 40-50

 

[Flippy]

Yes, a primitive one costs only around 10 euro and a little bit better around 40-50

Indeed :-) I wish I could solder myself and others well again. :-(

 

[faust]

Indeed :-) I wish I could solder myself and others well again. :-(

Indeed :) I never ever soldered before, so I have a very nice chance to finally destroy the vaporizer :D

 

[S1mpleme]

So, I had my doctor's appointment today. Went exactly as I thought it would despite me trying to remain hopeful. I explain my situation, and 90% of what I say goes right over the head of the doctor. She did not care at all about all of my most debilitating symptoms, and only wanted to treat the one thing that has come up wrong on my blood work. I understand wanting to treat that, but when it fails to explain why I'm experiencing so many other things, I don't see why it doesn't warrant further investigation. Not a single doctor has ever wanted to dig deeper.

Five years of hell, and there is still absolutely no light at the end of the tunnel. It's insane to me. I wouldn't be surprised if I CTB within this week.

I never in a million years imagined 21 to look like this.

Do you mind to tell more about your illness? You can PM if you want.

 

[GrizzlyGrapefruit]

Sorry. I spoke to my psychiatrist today, told her the latest round of mystery pills she prescribed me have done fuck-all. "So just double the dose!".

With which other brain chemical-altering substances can a "professional " be so fucking glib about? Pumping twice the amount of chemicals into a person with no idea of what it's going to do to them? I was astonished. But ask for double the dose of benzos or pain meds and see how fast you're cut off.

I'm sorry the medical profession has failed you. I'm really starting to believe unless you have a traumatic injury, we don't have healthcare. It's all about earning money, or not spending resources.

I agree with everything you said. I don't believe that the majority of doctors understand just how negatively they can influence someone's life by over medicating them. I feel like we live in an unfortunate time where many doctors are under the impression that pharmaceuticals can't harm people in the long term just because they're able to be put on the market. It's a real shame. I also agree about the traumatic injury statement, and I'd also add that if your illness isn't able to be diagnosed, you're out of luck.

Have you been doing your own research to try to figure out what's going on? Sometimes they listen better if you bring ideas to the table.

I have been. I've found communities of people who have been suffering with the same issues as me ever since taking Accutane. Unfortunately no one has been able to find a way to fix the problems. Also, the doctors I've seen (and there have been many) also look at me like I'm crazy when I suggest that they look at all of these other reports of people having a similar reaction to Accutane. It's so patronizing it hurts.

I honestly think I'm completely loosing faith in doctors. It's like "here's my assessment, take this and stop bothering me!" And when you have the nerve to maybe try to push them to reconsider something you are worry may have been overlooked they behave like you have no right to raise concerns. It's like you are questioning their infallibility! FFS!

This is exactly how my last appointment went. It literally felt like she was trying to push me out of the office as quickly as she could. When I questioned her about why she wants to treat me for something that fails to explain my most debilitating symptoms, she went straight to asking me if it could be anxiety. From all my years of seeing doctors, I have learned that anxiety is a doctor's go-to when they are unable to explain or figure out what is wrong with you.

Do you mind to tell more about your illness? You can PM if you want.

I reacted very poorly to a medication called Accutane. Reactions such as mine aren't documented in medical literature, so the medical profession at large refuses to acknowledge that something like this could happen. As a result, there really isn't a name or any treatment (or research looking into a treatment) for such cases, but people who have formed communities founded on the basis of having this condition usually call it PAS or "Post Accutane Syndrome."

 

[TAW122]

I'm sorry to hear this, and your doctor is rather insensitive and uncaring. Shame on her for ignoring and dismissing your 'issues'. I hope you are able to find peace when the time comes.

 

[Flippy]

Hell yeah doctors love to hang it all on anxiety! All I can say is, keep fighting for them to do their job properly and help you! It doesn't seem to take much for doctors to throw their toys out of the pram when they think you are calling into question their infallible word. They need to pull all that ego out of their ears and damn well listen!

I had been diagnosed with something years ago that I had accepted and thought I was doing reasonably well to cope with until recent years. Now I'm just told that I'm just a bit sad and anxious. I don't have the condition I have very vivid memories of getting a diagnosis for! Makes me really annoyed and probably explains why I'm still unwell after they have been dismissing me like I'm some sort of idiot poseur for months now! What irritates me is that I had all the written proof from the mental health team and psychiatrist who diagnosed me in a file somewhere and I've lost it maybe when moving or more worryingly I managed to leave it at my old workplace! :-0 that makes me feel just great that they could be pouring over it right now for all I know! :-0 Sorry :-0 Rant over :-/